Sunday, February 14, 2010
Annabel was diagnosed after birth with full Trisomy 18. I received the phone call from the doctor and was told she could not and would not survive. She is now 4 1/2 and is such a little fighter. Beside the Trisomy 18 she experiences Grade V reflux from bladder to kidney which has surgically been repaired. She also has a neurogenic bladder/bowel which creates the need to help her by cathing her and using large doses of laxatives. She has a large VSD and all her valve are affected in some way but she has not had heart surgery as of yet. She suffers from multiple GI issues from almost no motility, not able to process sugars and very low muscle one. She was bottle fed until she was 3 years old. She had a g-tube placed to receive her liquids. She ate by spoon until recently. They have removed her from all oral feed now and will have all her feed through her button.
She is in the early stages of pulmonary hypertension, suffers from obstructive and central sleep apnea. She has to sleep on oxygen/bi-pap.
She is so full of personalilty and is the joy of our lives. God continues to bless us each day through Annabel.