Elijah was born August 25, 2009. He was diagnosed prenatally at 13 weeks with Down syndrome. Six months into the pregnancy, we learned he had an AV Canal Heart defect that would require open heart surgery when he is between 3 and 6 months old. We are so lucky that he was born so healthy and is continuing to do well. Although he is having trouble gaining weight, he is a happy little baby. We just participated in our first Buddy Walk and it was one of the best days ever! We take things day-by-day and appointment-to-appointment, since we are still not sure when the surgery to repair his heart will happen. Elijah is our little superstar and we love him more than anything. We waited so long for him and we are blessed with his little facial expressions and milestones every day. Thank you so much for his beautiful blanket!
What a little sweetie!! My daughter also has Ds and had open heart surgery to repair her AV canal defect. If this mom would like someone to talk to, I'd love to share my info w/ you. I can be reached at itwife@gmail.com
ReplyDeleteKimy
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