Grace came to us through adoption. Her birth mom was on Depakote, for a seizure disorder, during her pregnancy. They knew before Grace was born that she had significant heart defects. She had a large PDA which had to be ligated twice, two ASD's, PAPVR, with unusual anatomy. Her heart is only one of multiple congenital anomalies. Grace was in foster care for the first year of her life, she came to us with significant, global delays. After feeling like things just weren't "right", we recently learned that she is missing a piece of her first chromosome and a part of a gene. She has had several surgeries, multiple hospital stays, more echo's and chest x-rays than one could count. She's been poked on, abandoned, found and restored. She is such a gift...perfect in our eyes...strong and beautiful. We thank God for bringing her to us! The Baker's
what a blessing, she is precious!
ReplyDeletebeautiful story...and beautiful daughter! You are blessed!
ReplyDeleteWhat a Beautiful and Strong little Girl!!
ReplyDeleteGod Bless You
SMILE
What an adorable little girl! And what a wonderful story of love and hope. She will always be in my thoughts and prayers.
ReplyDeleteLots of love from a Grandma named Mimi!
She's a precious little angel. Our daughter Kaylee was diagnosed with 1p36 deletion syndrome, she's missing a small piece from the tip of chromosome one. Does Grace have this particular syndrome too? You can learn more about 1p36 at www.1p36dsa.org. Thanks for sharing your story..it's very inspirational! God bless your family!
ReplyDeleteSherry Culvahouse (mom of Kaylee 18mo/1p36 & Allison 5 yrs)